Peter's pediatrician called today, our first conversation since the surprise phone call only two weeks ago.  He's been keeping up-to-date through his nurse and conversations with the hematologists.  He wanted to know if I had any questions (not really) and said that he'd be working closely with the hematologists to keep Peter comfortable and maximize his quality lifespan.  He also said that for a number of reasons, he feels strongly that our decision in favor of supportive care is absolutely the right thing to do.  It's nice to hear that from yet another medical professional.

Peter's home today for Veteran's Day.  He's all excited about tomorrow evening.  Leo has planned a pizza and movie night at home with his friends which will include Peter.  This is the first time Peter's had this kind of opportunity.  Leo's even taking Peter with him to round up all his friends.  Peter loves riding around in Leo's car.  The movie is a big favorite for all of us -- Slumdog Millionaire.  "Mommy, Leo is being so nice! I love Leo!"  (Of course, he always says that when Leo stops to pay him any attention! 23-year-old are pretty much in their own heads most of the time).

Peter must have seen me working on the blog last night.  I'm not going out of my way to be secretive, because I'd like him to take charge of the process of learning about his condition.  Better that he should ask questions when he wants to.  So at bedtime, he comes to me and says, gravely, "Mommy, is there something wrong with my health?"  (This is a surprisingly sophisticated choice of words for him).  I replied, "Why do you ask?"

"Well, I saw something on your computer ... like ... Blubber?"
"Oh, it was probably Blogger".
"Yeah, probably."
"Well, yes, you already know that your blood is sick."
"Unh-hunh".
"But YOU'RE not sick, are you?"
"No".
"Nope, you're not".
"But Mommy, I'm tired." (leans against me and puts his head on my shoulder)
"Really? I don't think you're any tireder than you always are".
"No, mom, I'm really tired in the morning.
"More than you've always been?"
"Yeah, mom, a lot more tired, in the morning I'm tired."
"Mmm-hmm. Well, I'm glad you told me.  You want to talk about it?"
"No, Mommy.  I'm just tired."

He does get winded much more easily, and I've noticed it most within the last few months.  It made me realize that I'd have to slow down a bit in India vs. the current plan.  Previously, I laid it to his overweight and poor cardiac conditioning.  Who knows?